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| Custom designed hand splints like this one replaced muscle power lost to polio. Photo © RWSIR |
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Walking up and down a flight of steps becomes a precarious balancing act for persons using leg braces and crutches. So basic training at Warm Springs included this basic skill as well as how to get up from a fall. Photo © RWSIR |
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| Therapeutic heat was one technique used to relax taut muscles. Photo © RWSIR |
At Warm Springs, the children found themselves in a place where everyonelooked
like them: on crutches, in wheelchairs or flat on their backs on gurneys,
able to lift only their heads. They entered a society that the facility,
supported first by Franklin D. Roosevelt's money and later by private
charities, strove to make as normal as possible. There were Thanksgiving
dinners, costume parties and movies every Saturday night.
Parents did not stay at Warm Springs. Some visited periodically, if they
could afford it. In the days before interstate highways, it was an expensive
trip and a long drive. But even though they were lonely for their families
and struggling with their new disabilities, the kids of Warm Springs were,
well, kids.
"One day it had rained like mad and there was a huge lake that had formed
on the way to (the dining hall)," said Steinhauer, who entered Warm Springs
at 8 years old after losing the use of his right leg. "I was in a wheelchair.
So I rolled right out in the middle of that lake, but then I couldn't
get any traction, and a nurse named Miss Lillian Zuber had to come and
push me out."
The mildest therapy used at the hospital was exercise, performed on wooden
platforms in the buoyant water of spring-fed pools. The harshest was surgery,
used to freeze weak joints, straighten curved spines or transplant muscle
tissue where it might do more good. Patients might spend months in body
casts, recovering.
Looking back with the benefit of decades' more medical knowledge, the
returnees have had to come to terms with how experimental many of those
surgeries were. Often, they turned out to be useless.
"I don't have any complaint about anything that happened here," said Sandra
Bath, 55, of Savannah, a Warm Springs patient 50 years ago. "We were here.
We were taken care of. Other places, they put people like us in institutions."
Some of the polio survivors visiting Warm Springs this week never returned
once they were released to their families. Others, though, came back many
times --- to have more surgeries and therapy, to adjust their outgrown
braces or to conquer new skills they needed as they became adults.
"I learned to drive here," said Glidden, 55, of Chester, S.C., who uses
a wheelchair and wears a heavy corset to keep her torso upright. "My parents
would bring me in June and come get me in August. I learned to be independent
here."
Betty Wright, 52, the co-founder of the Atlanta Post-Polio Society, said
Warm Springs was where many discovered their first true friendships, many
of which are being rekindled this week.
"It let you belong in both worlds: You lived with your family, and then
you would come here, and it was like you opened the door and were home
again," she said. "A lot of us have a lot of fond memories. It sounds
funny, but we were happy here."
Over the hum of motorized wheelchairs and the clank of two former friends
"shaking hands" by tapping their outstretched crutches together, many
of the polio survivors said they are not entirely unhappy to have had
polio. It taught them toughness and persistence. It let them experience
nurturing and compassion. It challenged them not to accept limitations:
In an impromptu poll taken at breakfast Thursday, most of the polio survivors
said they had traveled to Europe, South America or Asia, and many had
two children or more.
And it brought them to Warm Springs, their second home.
"There is so much emotion tied up in this place for them," said Dr. Anne
Gawne, who directs the Warm Springs clinic that treats former patients
who are developing the new disabilities of post-polio syndrome.
"They went to school here. They socialized here. They had romances here.
This is where they grew up."
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Additional readings and information about polio and post polio
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